The developmental disability community has to navigate a lot of acronyms and terms that most people aren't familiar with. Here is a quick briefing of major ones that affect benefits.
ALTSA
= Aging Long-Term Supports Administration. The part of the Department
of Social and Health Services (DSHS) that administers general disability
supports.
DDA = Developmental Disability Administration. The
part of the Department of Social and Health Services (DSHS) that
administers supports specific to certain developmental disabilities.
DD
= Developmental disabilities. These are defined differently depending
on the entity. The Centers for Disease Control (CDC) uses a broad
definition that captures a large group of disorders related to development delay in
childhood; this definition represents 15 to 17 percent of the
population. The federal DD Act uses a much narrower definition that
limits the scope of “DD” to people with severe and chronic disabilities
that start in childhood, continue indefinitely, and result in
substantial functional limitations in 3 or more areas of major life
activity; this captures 1 to 2 percent of the population. Washington state also defines developmental disabilities in its administrative code and uses this definition to determine who gets supports from DDA; fewer than 1 percent of Washington's population accesses services determined by its WAC definition.
DSHS =
Department of Social and Health Services. Houses DDA, DVR and ALTSA - all
agencies people with developmental disabilities often use
DVR = Division of Vocational Rehabilitation. A statewide resource assisting people with disabilities to prepare for, secure, maintain, advance in, or regain employment
HCBS
waivers = Home- and community-based services (paid for by Medicaid)
that people can access in lieu of institutionalization. Ones administered by DDA are also called "DD waivers." HCBS waivers are
needed because federal law defaults to large institutional care. Access
to respite, employment and residential supports, and other common services used by people with developmental disabilities often comes via HCBS waivers. These are funded by Medicaid, but they are not entitlement. Qualifying for a HCBS waiver does not automatically secure services. The state decides every year in its operating budget how many people to provide services to, and what level and type of services to offer. Washington does not forecast HCBS waiver services for people with developmental disabilities.
I/DD = Intellectual and/or
developmental disability. Refers to people with an intellectual
disability and potentially another type of developmental disability.
SSI
= Supplemental Security Income. SSI is a means-tested program of the
Social Security Administration. It is designed to meet the basic needs
of elderly, blind and disabled individuals who would otherwise struggle
to pay for food and shelter. It has a very strict set of financial
requirements. Beneficiaries typically receive Medicaid.
SSDI –
Social Security Disability Insurance. SSDI is an entitlement program,
typically available to anyone who has paid into Social Security for at
least 10 years. Younger beneficiaries and disabled adult children of
retired or deceased workers may have to meet different requirements.
SSDI provides access to Medicare.
- Ramona Hattendorf, Director of Advocacy